MyAI Registry for People with Adrenal Insufficiency
Trial Objectives
To help better understand adrenal insufficiency (AI) and its progression, researchers have developed a new registry called MyAI. Information collected via online surveys for the registry will help researchers learn about patient experiences with the illness and how it is impacting their lives. Researchers also will use the data to assess the effectiveness of current treatments and identify common causes and risk factors for AI. Adults, as well as children from birth to age 18, who have been diagnosed with AI or who are at high risk of developing the disease are needed to participate in the registry.